NESSA.

The Nessa Foundation

Her memory.
Our mission.
A cure.

Dementia took the brightest light our family ever knew. We started this foundation to fund the research that finds it earlier, and one day, ends it.

Nessa Foundation emblem: a mother and son, with the tagline Remembering Her, Honoring Her, Helping Others.

Our Film

Her story, in one minute

Narrated · 1 minute · In loving memory

“Her name was Nessa. Her light will outlast the disease that dimmed it.”

In memory of Zahir Nessa Khan

In Loving Memory

Zahir Nessa Khan

1949 – 2022

Zahir Nessa Khan built a life on her own terms long before the world made room for women to do so. She earned her Master’s in Political Science from the University of Karachi, then in the 1970s left everything familiar behind to start again in Canada, a sharp mind matched by an even sharper will, a woman who understood the world and refused to be made small in it.

At 45, she became a single mother. She worked three jobs to raise her two sons, never once letting them feel the weight she carried. Strong, independent, relentless. She never gave up, no matter what life asked of her.

And she was fun. The life of every party, the brightest light in any room. Her laughter and her warmth were the things people remembered first, the Nessa her family will always hold onto.

She was the last of fourteen; all thirteen of her siblings were lost to heart disease, and still she carried on. In her final years, dementia slowly dimmed that light, and watching so vibrant a soul fade was the hardest thing our family has ever known.

She spent her whole life lifting others up. The Nessa Foundation, her name, her legacy, is how we keep her doing it.

Why I Started This

I am her son. I watched dementia take the most vivid person I have ever known, slowly, and then all at once. My mother was found late, the way almost everyone is, and by the time the disease had a name it had already taken years from her.

That is why I do this. I am a co-inventor on an issued US patent, “AI-Driven System and Methods for 3D Medical Image Disease Detection”, technology that reads medical scans to catch disease earlier, with dementia among the conditions it is built to detect. Four related patents are on the way. My whole career has run on one belief: the sooner we can see this disease, the more we can do about it, and the closer we come to stopping it.

I started the Nessa Foundation to carry that belief beyond any one lab or invention. The Foundation funds independent dementia research, the scientists and studies across the whole field working toward what my mother was denied: an early answer, better years, and one day a cure.

This is personal. I will not stop until it is.

Sajed Khan, Founder

Why It Matters

Dementia touches nearly every family

Keep these figures or replace them with current, sourced numbers from a trusted body such as the World Health Organization or the Alzheimer’s Association.

55M+

People worldwide are estimated to live with dementia today, with millions of new cases every year.

Earlier

Detection changes everything, more time, more options, more life. It’s where research is moving fastest.

$0

Cure exists today. Research is how that changes, and research needs funding.

The Mission

Find it earlier. Fight it harder. End it.

Every gift the Nessa Foundation raises goes toward advancing dementia research, funding the scientists, studies, and breakthroughs that bring earlier detection, better care, and a cure within reach.

We believe one family’s grief, turned into purpose, can become momentum for everyone.

Where Your Gift Goes

Independent dementia research

Every gift funds independent research, grants to universities, scientists, and institutions pursuing earlier detection and a cure. We fund the science, never a single company, so every dollar serves the cause and the families behind it.

First-year goal: $1,000,000

The Search for a Cure

An inventor’s mission, a family’s promise

Our founder is a co-inventor on an issued US patent for AI that detects disease earlier from medical scans, with dementia among its targets, born from watching it take his mother too late. The Foundation carries that mission into the wider field, funding independent research toward the same goal: find it sooner, and end it.

Read the story and the science behind the fight for a cure.

Explore the Research

Ways to Give

Every gift carries her forward

One-Time Gift

A single donation of any size goes directly toward dementia research in her name.

Give Monthly

Steady support that lets research plan for the long road toward a cure.

Give in Memory

Honor someone you’ve lost. We’ll send a note to the family letting them know.

Fundraise

Start a birthday, run, or community fundraiser in her honor and rally your circle.

Volunteer

Lend your time and skills to events, outreach, and awareness in your community.

Corporate Match

Many employers double your gift. Ask your company about matching donations.

Stay Connected

Follow the journey

Share your email to hear about our progress, events, and the research your gifts support.

Reach Us

Get in touch

Email: info@nessagives.org
We’d love to hear how you knew her, or how you’d like to help.